I got a warm greeting from Lydia when I came home from my volunteering stint at the Buddhist Centre this afternoon.
It was cold-ish outside but I layered up, although stopped when sleet started to fall. The sleet didn’t last long but by then I’d done a reasonable job so I had a cup of tea – decaff – then went home.
We had a good walk together in the morning – also layered up. She didn’t want to wear her raincoat but I insisted and was glad that I did. I think she was too.
Writing a blog post every day is a challenge I’ve set myself, after several years of only being able to write a blog post every few weeks or months. It’s taken a long time to get my brain to work the way it is working now, and writing has played an important part of my recovery journey.
Getting stuff out of my head and on to paper – however, incoherent and uncoordinated that stuff was – helped with clearing out the crap. I started the process long ago, it’s only now that I can write with a sense of connectedness to my self, and a sense that it might also help to connect with others.
A lot of people may think that they “can’t write”, like a lot of people think that they “can’t sing”, or draw, or paint, or do anything much at all.
We often judge and self-limit, at least in part because we’ve been previously judged and limited by people who wanted to control us, who didn’t want to feel threatened by our presence; our potential.
I know now, quite categorically and with absolute certainty, that I can sing.
I may not sing in a way that other people would consider to be ‘in tune’ or appealing, but that doesn’t matter. I can sing.
My favourite song to sing is ‘Fairytale of New York’ by The Pogues. I used to sing it every year at work, with my mate Dave. I last sang it – loud and strong – at a Hen do.
I know also that I can write. I write because I want to and I hope that my writing may also help anyone reading it to find the sense of self that I have done, in a world that for many years didn’t make sense to me at all.
I’ve struggled all my life to identify with any kind of role; but I do now identify with the self-appointed roles that I have: writer, artist and dog trainer (not necessarily in that order and with no qualifications whatsoever for the latter).
I’ve had holding ‘roles’ before, that were part of my development and needed to be, but they have all led up to this, and the work I do now, with words, with clay and with my dog.
Today I pile on warm clothes push toes into boots hands into gloves fix helmet on head put pressure on one pedal after another with grey treads turning on icy tarmac in reflective waistcoat I propel myself down the hill looking like a wasp on wheels
Feet freeze into tennis balls wind works its way in between folds finding skin it’s an easy ride but I’m glad to arrive at work this morning
Evening comes and I do it all over again this time lungs stretch and scream at the incline that challenges me to stop but thoughts of home and rest are the pull
Pushing, pushing, pushing keeps the wheels turning until I arrive at the gate maybe a bit late hair wet with sweat pedals finally still pushing finished for today
Turning the corner the familiar fields and shelters come into view
Open outlook, clear and calm this is the place where past harms are healed
Friends old and new graze on at steady pace it’s never too late for needs to be met just a turn of fate
The familiar fields and shelters will come into view again next year the way ahead may not always be calm and clear but we can always come back to this place this sanctuary
And marvel at the donkeys stroke the pony’s mane it’s always different every year and every year, just wonderfully the same
It’s around a year ago today that my friend, Rosemary, passed away. She was 49.
I wrote the above poem after we had been to visit an animal sanctuary in Norfolk. Rosemary had introduced me to the animal sanctuary because she had adopted a Shetland pony who lives there, Sampson.
I suggested we go and visit which we did, and revisited a few times more, before it got to the point where it was too much for Rosemary. She found it too tiring, she said, which it was. It was too tiring because she smoked heavily and was an alcoholic.
Rosemary had been diagnosed with schizophrenia in her early 20s. While she never opened up much about her past or about anything emotional at all really – I was told in no uncertain terms to ‘leave it’ if I prompted her in any way – she did tell me once that the psychiatrist who diagnosed her told her that she would never work again.
That may well have been the case in the conventional sense of what constitutes ‘work’ in our society, but if it was unlikely that she would ever do regular paid work again, that prognosis could have been presented differently, to give Rosemary a sense of hope of having a fulfilling life, even if not the life that she would have been hoping for as a young woman in her 20s at that time.
In recent times there has been a lot of talk about mental health and a lot of awareness raising in the media, but when it fundamentally comes down to it, has anything significantly changed to ensure that people who have diagnoses of extreme forms of mental illness can find some way of identifying themselves with a meaningful role, a sense of positive purpose, in the world? I’m not convinced that it has.
Some people are fortunate to be partners, wives, husbands, mothers, fathers, which can help to offset the stigma and isolation that accompanies their condition, but many – like Rosemary – do not.
Rosemary was not an easy person to get on with. She pushed people away, more often than not, and did make lifestyle choices – however hard and judgmental that sounds – that led to her limiting her own life in many ways. But I have often wondered how different it would have been if, when given that diagnosis of schizophrenia all those years ago, she had been told about all the things that she could keep doing – and all the support that she would get in the process – to help her feel good about herself and her life, whatever form or path that took.
Having extra support at a critical time can make all the difference between us, on the one hand finding our own strength and resolve to come through with a sense of purpose and, on the other hand, wavering and floundering and – at best – just not drowning.
At times Rosemary pushed my patience to the limits and then some (and she knew it!), but I could only try and imagine what difficulties she went through every day. Somehow, through that diagnosis, and prognosis, and the position it placed her in, in the world, all her intelligence, her good memory, her dark sense of humour, her creativity, her kindness to animals and sense of fair play got devalued, not least by her.
Thank you for the friendship that we shared Rosemary. For the times we spent at nature reserves and animal sanctuaries, the concerts we went to and the smile that you used to greet me with.
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